Family‐centred care in cystic fibrosis: a pilot study in North Queensland, Australia
نویسندگان
چکیده
AIMS The aims were to: (i) examine perceptions of family-centred care of parents of children with cystic fibrosis and healthcare professionals who care for them; (ii) test design and tools in a regional population. DESIGN Quantitative pilot study of existing questionnaire. METHODS The methods involved were comparative, cross-sectional survey of parents of children with cystic fibrosis and health staff in North Queensland, using "Perceptions of Family Centered Care - Parent" and "Perceptions of Family Centered Care - Staff" questionnaires; and descriptive study of tools. RESULTS Eighteen staff, 14 parents (78%, 61%); using Mann-Whitney U, showed no significant differences in scores in categories: 'support' 'respect', 'collaboration'. Comments about suitability of questionnaires varied, but were largely positive.
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عنوان ژورنال:
دوره 4 شماره
صفحات -
تاریخ انتشار 2017